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BB Blog — chemo

Everybody's Free - a song to start the new year.

Posted by Emilienne Rebel on

Everybody's Free - a song to start the new year.

Despite my love for the lyrics of Finneas O'Connell and James Blunt currently, this song seems to be everywhere I turn (as with the numbers 2222) and so I thought I'd share it as many of its words speak to me

Its been around for a while, but I bet some will hear for the first time and some will be grateful to hear it again. Such simple yet wise words... "You are not as fat as you imagine" and "Don't worry about the future" resonate with me... but "Don't put up with people who are reckless with yours [heart]" is good advice. I've never lived in New York City or California (although I have lived in the USA) so new additions to my Bucket List... why not ? :) 

Which of the lyrics 'speak' to you? You can comment below.

The song, released in 1999, was written by Nigel Andrew Swanston and Tim Cox and performed by artist Baz Lurhmann. I've copied the lyrics below. 

Listen to the song here on YouTube: 

https://www.youtube.com/watch?v=5giWfpANMac

Lyrics
Ladies and gentlemen of the class of '97
Wear sunscreen
If I could offer you only one tip for the future, sunscreen would be it
A long-term benefits of sunscreen have been proved by scientists
Whereas the rest of my advice has no basis more reliable
Than my own meandering experience, I will dispense this advice now
Enjoy the power and beauty of your youth, oh, never mind
You will not understand the power and beauty of your youth
Until they've faded, but trust me, in 20 years, you'll look back
At photos of yourself and recall in a way you can't grasp now
How much possibility lay before you and how fabulous you really looked
You are not as fat as you imagine
Don't worry about the future
Or worry, but know that worrying is as effective as trying to solve an algebra equation by chewing Bubble gum
The real troubles in your life are apt to be things that never crossed your worried mind
The kind that blindsides you at 4 p.m. On some idle Tuesday
Do one thing every day that scares you
Saying, don't be reckless with other people's hearts
Don't put up with people who are reckless with yours
Floss
Don't waste your time on jealousy
Sometimes you're ahead, sometimes you're behind
The race is long and in the end, it's only with yourself
Remember compliments you receive, forget the insults, if you succeed in doing this, tell me how
Keep your old love letters, throw away your old bank statements
Stretch
Don't feel guilty if you don't know what you want to do with your life.
The most interesting people I know didn't know at 22 what they wanted to do with their lives
Some of the most interesting 40-year-olds I know still don't
Get plenty of calcium
Be kind to your knees
You'll miss them when they're gone
Maybe you'll marry, maybe you won't
Maybe you'll have children, maybe you won't
Maybe you'll divorce at 40, maybe you'll dance the 'Funky Chicken'
On your 75th wedding anniversary
Whatever you do, don't congratulate yourself too much
Or berate yourself either
Your choices are half chance, so are everybody else's
Enjoy your body, use it every way you can
Don't be afraid of it or what other people think of it
It's the greatest instrument you'll ever own
Dance, even if you have nowhere to do it but your own living room
Read the directions even if you don't follow them
Do not read beauty magazines, they will only make you feel ugly
Brother and sister together we'll make it through
Some day a spirit will take you and guide you there

 

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My cancer story, twelve years on... Lotte is now a teenager!

Posted by Emilienne Rebel on

My cancer story, twelve years on... Lotte is now a teenager!

Olivia was 3 years old and Lotte just 7 months old (still being breastfed) that fateful Wednesday twelve years ago when I was told I had cancer. My 'Cancer Journey' is very much linked to my children and being a mum 

Joking with the Breast Surgeon that I hadn't come to my appointment to get the results of the previous week's biopsy on my own... I had the baby with me! I had found the pea-sized hard lump under the skin whilst breast feeding and knew this wasn't 'my normal'... but still I wasn't really worried. I had no family history, I was not overweight, I'd never smoked, drank little, vegetarian and breast fed both my babies... couldn't be anything right? Wrong.

Investigations, lumpectomy and lymph node removal and various scans proved the cancer was aggressive... I had Grade 3 advanced Breast Cancer. Without intensive and immediate action my life was in danger and I wouldn't get to be a part of my children's lives; I wouldn't get to be their mummy. The worst thought for me personally was that they were too young to remember me. 

I had to do everything I could to ensure every year possible... to get to an age where they would remember me... feel my love for them and know how precious they were to me. I repeat, my cancer journey' is very much linked to my children.  

Twelve years ago this weekend just gone Lotte had her 1st birthday and whilst I was too ill to arrange a party for her we started our new tradition of 'Birthday Breakfast' and I vowed to make every other birthday very memorable for them.

I had my second chemotherapy infusion on that day at home. My hair had already started to fall and I'd shaved it in preparation. Quite a traumatic experience and I with hindsight urge any woman needing to shave her head to entrust this to someone they trust and is very sympathetic, whomever that may be (which may not be the obvious choice).

Losing my hair with Chemo whilst it was difficult to deal with at the time with my young family. I looked very ill. I lost the hair on my head and all over, including my eyebrows and eyelashes and combined with the bloating from the steroids, I looked very different.

My hair loss however set me on a path to start my business Bold Beanies and make a range of cancer alopecia headwear and gifts to make a terrible situation a little bit more bearable. I designed them with younger cancer patients in mind with an emphasis on style as well and for comfort and ease. 

I was unable to lift my arms for long after my mastectomy and lymph node removal and therefore tying traditional headscarves was too difficult for me. I needed something soft and simple to slip on and get on looking after my children. I also felt incredibly cold at night. The wooly beanie hat I wore was itchy and often got too hot, so I would take it off and then I would get cold quickly. My chemo headwear needed to be made from thin natural cotton material, soft, stretchy, breathable and temperature controlling. Its so much easier to face the side effects of cancer when you're able to get a good nights sleep. 

Having received a lot of flowers by post from well meaning friends and family, I also felt it very important to provide gift solutions for cancer patients, helping those around them feel less helpless. 

With every year that passes I gain strength in the bond I have with my girls. I teach them, I guide them to grow into confident young women who very much know they are loved whether I am with them or not.

Whilst I continue to battle with making my life count, battling the feelings of borrowed time, a bucket list of dreams and the normalities of being a single parent with a growing business and people in my life who are determined to make it harder than it needs to be... I hope that others who are at the start of their story with cancer that they get some comfort from my 12 years... sharing the positive stories is so important. I'm still here and enjoy every day with my children and look forward to the exciting times in their lives that I get to be a part of. 

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Oncologist Visit, Tamoxifen & Hormones.

Posted by Emilienne Rebel on

If you have ever had a cancer diagnosis, it's all consuming. A relentless round of hospital visits, doctors appointments and potential surgeries, chemotherapy, radiotherapy, scans... but always a rollercoaster of emotions and anxiety for you and your loved ones. For a time in your life it dictates everything.

And then, if you are lucky enough you come through the other side, life somehow eventually needs to return to 'normal'. You need to get on with everyday life, prepare for events, take care of loved ones and pay those bills... and try as best you can to remember the lessons learned and live the best life possible. 

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Bold Beanies Chemo Hair Loss Headwear - Emphasis on Comfort, Ease & Style...

Posted by Emilienne Rebel on

Bold Beanies Chemo Hair Loss Headwear - Emphasis on Comfort, Ease & Style...

Bold Beanies cancer headwear has been specifically designed for cancer hair loss from chemotherapy by Emilienne (who lost her hair with chemo for stage 3 advanced Breast Cancer) When you've suddenly lost your hair because of the drugs you're taking and your hair 'hurts' whilst its falling out and your scalp is sensitive, sore and cold. 

-Bold Beanies headwear is super soft and lightweight; made to be as comfortable as possible with no unnecessary seams or labels to fit snugly onto the head and not slip around... you will simply forget you are wearing it. 

-The fabric is thin soft stretchy cotton so its naturally breathable, temperature controlling (so adjusts to the conditions of the day), sweat-wicking and UV protective. 

-Bold Beanies Hats, Head-wraps, Headscarves and PICC sleeves are designed with Style at the forefront. Using the world renowned Liberty Print Fabrics and best plain coloured fabrics in the UK for Women, Men, Teen and Kids of all ages and tastes. You are sure to find something you like and that flatters and make you feel a little bit more confident and better about your day. 

-Bold Beanies head covers are very easy to put on. This is especially good for anyone after surgery or for the elderly. There is no right or wrong way and the stretchy soft fabric makes the head wraps and scarves easy to tie. 

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HeadWrappers Recommends Bold Beanies Trusted Headwear Online

Posted by Emilienne Rebel on

HeadWrappers Recommends Bold Beanies Trusted Headwear Online

Bold Beanies is very proud & happy to be a trusted supplier & recommended by HeadWrappers. 

HeadWrappers offers FREE support for those suffering hair loss as a result of Cancer treatments. 

Visit the online support service and join a session at many Maggie's Centres and Macmillan Cancer Information Support Centres

https://www.headwrappers.org/

This service is for anyone who has lost or is likely to lose their hair due to cancer treatment. During a HeadWrappers Appointment you can expect to:-

  • Either have a private appointment for up to one hour or a two hour group session with trained volunteers who understand the impact of losing your hair

  • Feel more confident coping with hair loss

  • Receive practical tips on caring for your hair and scalp before, during and after treatment

  • Learn how you can make the most of scarves, hats and hair pieces as an alternative to wigs

  • Learn scarf tying techniques

  • Try on a range of different headwear to see what suits you best

  • Receive your personal Wish List with detailed information on how to purchase items

  • Talk through any concerns you may have about your hair loss

  • Receive guidance and sign posting to other charities and support organisations

  • Receive your Bold Beanies Online Shop Headwear Discount Code.

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